For the last sixteen years (since my children's diagnosis) all of my most important choices have revolved around this one, larger than life question, "Will this bring us closer to a cure?"
I think as parents, we're tried and tested on a daily basis on how to best care and look after our families. In our situation, the kids' medical care has always had to take a front seat. My children are seen regularly at St. Jude Children's Research Hospital. They are a cutting edge research hospital, and being a patient there means that you agree to take part in studies that the hospital is conducting.
When asked if we will take part in a particular study, my "clarity" question comes in handy. It helps me to focus on what's most important for my children. If I feel that the study is too invasive or just not right for my children, naturally, I decline. If we all decide that a certain study they ask the children to participate in could benefit, or even possibly bring us closer to a cure, then we jump on board.
My children have beaten some incredible odds and I thank God every single day. Do I believe that one day my children will be cured of HIV? I do.
During our last visit to St. Jude, we were talking with one of the workers. The kids were enrolled in a "survey" study in which they had to answer questions about their general knowledge of HIV. One of the questions they were asked was, "Do we have a cure?"
I smiled when my son answered, "Yes, of course. We just need to find it."
His words just may have been prophetic. Read this amazing story and you'll understand what I mean.
I don't usually ask my blog followers for favors, but because I believe so strongly in the power of prayer, I'll ask that you pray for this child, his family, and the doctors who are attempting to cure him of both his HIV and cancer. This "first of its kind" transplant could lead us toward what my family already believes possible...a cure for HIV.